“Hi there! Thank you for taking the time to read about me in the eyes of my mom since I’m nonverbal. But hey, mom has always been my advocate. I was born on July 5, 2015, at midnight at Tacoma General in Washington. Mom says it was an easy delivery since she was watching fireworks.
It’s been a journey for me and my family since my birth. Mom says I uttered words at the age of 2, but I lost my words when I received my vaccinations. Of course, my doctor said there is no research to back up the coloration of immunizations with my condition. But that’s how my journey started.
When I was 2 and a half years old, I was diagnosed with autism. But aside from that, I had a lot of other health issues going, including breathing problems and reflux. My mom spent almost every month taking me in the emergency room. She requested for another neurologist’s test/evaluation. In February 2020, I had a very high fever. I remembered this was the time of COVID-19. I felt scared that I may have contracted the virus.
I was rushed to the ER where they said I was fine. It was in March when Dr. Makari from Mary Bridge Children's Hospital (neurology) saw me on a virtual visit. He said I may have Rett syndrome. My mom went off with lots of questions, ‘What? How? Why? When? Oh
Jesus! Help my Bella (as she likes referring to me).’
Of course, I had to go through genetic testing to confirm the diagnosis. In June 2020, I was officially diagnosed with Rett syndrome. Please read more about this horrible diagnosis here, https://www.rettsyndrome.org/.